Dance Dance Dance

By: Loolwa Khazzoom, Founder, Dancing with Pain

September 27th, 2009 • Leave a Comment

I was dancing an hour a day for a week or two, and even when I had a setback – like someone whacking me straight in the shoulder blade, which triggered all kinds of hideous pain and movement limitations – I was progressing every day in my healing (including the shoulder going back to a state of calm).

Then work stuff got crazy, and I didn’t dance, for just three days, and whammo, I was in the gutter. Then today I danced from that gutter place – ie, lying on the floor motionless, then moving a tiny bit, then writhing around on the floor, till I was sitting and dancing, then standing and dancing, and then – there it was – leaping around the living room floor.

DANCE DANCE DANCE. I must not forget. I must make time for it and believe in it no matter what.

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Depression Over Family Drama

By: Loolwa Khazzoom, Founder, Dancing with Pain

September 23rd, 2009 • 3 Comments

A couple of weeks ago, I wrote the post below. And felt incredibly free and powerful and physically stronger and healthier, like, immediately. Then I woke up in the middle of the night, thinking, Oh fuck, what did I just do. And I ran to the computer and promptly deleted the post (while saving it elsewhere).

But here’s the thing: Me continuing the way I’ve been is not going to heal shit. Not my relationships, not my body, nuthin. What’s more, there’s something about my needing to break the pattern of putting other people’s needs before my own.

As in, yes my story is tangled up with the stories of my family, and yes that’s messy, and yes I’m WAY the fuck conflicted about outing people I love, when their identity is all tied up in pretending. And no I don’t know how I’m going to feel about this after I do it, and yes I may be making a mistake, and no I can’t take it back once it’s out on the internet, and yes, I may regret it.

But I can’t keep going the way I’ve been going. A few weeks ago, I wondered to myself how it’s possible for me to experience transformational healing, spontaneous energetic healing, but to simultaneously not believe myself. And I realized, oh, duh, it’s because that was the script of my whole fucking life:

What is happening is not actually happening, so if you confront what’s happening, well, it’s not. And you’re a really, really bad person for making everyone feel terrible by saying that it is happening (when it’s not — did we mention that?). But that’s OK, we’ll love you even though you are being so hurtful and clearly ruining everyone’s lives and even though you are therefore such an awful person. 

As I get deeper and deeper into my healing, and perhaps also as I grow older, I become more aware that there are waves constantly crashing inside me. The reality and the denial of the reality. The truth and the script, the latter of which not only trumps truth at all times, but does so with such force that truth is no longer recognizable as such.

I properly compartmentalize what is not supposed to be addressed directly, openly, honestly, with raw spirit. The problem is that is not who I am. I am open. I am out. I am a no-holds-barred, punk-rock attitude, in-your-face, eat me, fuck you, laugh-out-loud-with-head-thrown-back, feisty, free-spirited kamkaze warrior-assed chick. I can no longer hold the conflict and contradictions, especially when they are not mine or my choice to hold in this way.

I want flow. I want energetic alignment. I want pure, clean internal water and air. I want to heal. I have put protecting family members above and beyond my own needs for decades. I cannot I cannot I will not anymore.

THE POST

Over the past few weeks, I have been dealing with varying levels of depression. Which is to say, I’ve been severely depressed but have managed to pull myself out of the depression to varying degrees, on a day-by-day basis.

I’m feeling stuck. For over two decades, I have done everything in my power to heal my relationships with my family and to have healthy, positive connections with them. But I can’t keep spinning through the same old drama, repeating the same core script in various permutations. I can’t keep trying, as a friend of mine said, to get milk from the hardware store.

A few months ago, I had a cranio-sacral therapy session with a new practitioner. It didn’t take much for me to start bawling my eyes out about my dad. The therapist asked me a question I hadn’t heard before: “Are the tears healing and productive?” I said yes, feeling that it’s always good to release any sadness inside. The more I pondered the new question, however, the more I came to realize that no, descending into this familiar pit of grief was not in fact healing and productive.

OK so then what. My dad is not going to change. Unless some miracle happens, chances are he will go to his grave the same as he is right now. Chances are there will be no truth, no understanding, no healing, no reconciliation. To me, that is profoundly sad.

If my dad were a happy-go-lucky type, and we just didn’t have a good relationship, that would be one thing. But his way of walking through the world makes him more miserable than it makes anyone else. So the grief I feel is on multiple levels:

I have to stand by powerlessly, watching my dad drown in the insanity and resulting misery of his life. I cannot jump in to save him, because he will not accept any of the life-saving devices I bring along, but rather will feel attacked by those devices, destroy them, and drown me along with him.

To preserve my own health and sanity, I therefore have to keep my dad at a distance. That distance in turn adds to my father’s misery, as he feels rejected by me and misses me deeply. I then feel guilty about and responsible for “abandoning” my dad, which in turn leaves me with feelings of self-hatred.

And then on top of it all, and I have to note, only at the end of the list do we get to my own needs and feelings, I miss my dad terribly and have a deep, unmet longing for positive, healthy, joyous love from him. And that makes me sad.

I always believed that if I worked really hard and kept reaching out from a place of love and kept forgiving and kept trying again, my family would someday make it to a place of nirvana — a place of healing and transformation, bringing warmth, closeness, light, and love to all our lives. But it looks like that’s not going to happen. So now what? Do I just give up on everyone and “move on”? Is this really all there is? Is this seriously how the story ends?

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Jumping off a Cliff into Freedom

By: Loolwa Khazzoom, Founder, Dancing with Pain

September 22nd, 2009 • Leave a Comment

I just watched the film “Kite Runner.” And probably can’t go to sleep for hours now, because it triggered a lot of physical and emotional feelings. It reminded me of powerlessness and humiliation. And the blatant and subtle ways in which these forces can operate.

It reminded me of secrets and traditional culture and roles people play to their graves. It reminded me of the power and beauty of truth and healing and standing up for oneself and ripping up old scripts and writing new ones. And the isolation and loneliness that go along with those decisions and actions. The fallout of being pitted against oneself, forced to choose between oneself and those one loves deeply.

It reminded me that I, too, am a storyteller. My entire life, I have been passionate about witnessing and chronicling precisely. So that I could remember the truth, as it was in all its detail and nuance.

As someone recently noted, my blog is not just a forum to write about healing. It is healing — my healing. And yet, for months, I have danced, as it were, around writing about personal stories that need to be released from my Being into the Universe — to free my soul and facilitate my healing even more deeply and wholly.

A few days ago, I was reminded of my first experience jumping off a cliff:

It was a cliff hovering over another cliff. Meaning, there was the possibility of flying like a bird into the water or splatting like an egg onto the rocks below. Oh, and did I mention I was scared of heights? The day I decided I wanted to jump into the water, I walked to the edge of the higher cliff, then walked back. Then walked to the edge, then back. And on and on like that, for about half an hour.

Then I realized something: There comes a point where you’re either going to jump or you’re not. If you’re going to jump, you cannot back away from the edge again. You have to actually jump. You can’t leap off the cliff while hanging on to its safety.

So the next time I went up to the edge, I jumped. And screamed the whole fucking way down. And felt incredibly free and powerful and exhilarated. And chortled with laughter when, after submerging in the water like a cannon ball, I surfaced again.

I’m not quite ready to take that leap tonight; I’m still dancing at the edge. But I’m getting closer to flight every time.

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Women in Pain Second National Conference

By: Loolwa Khazzoom, Founder, Dancing with Pain

September 18th, 2009 • 1 Comment

The unstoppable Cynthia Toussaint.  Regal in her wheelchair, addressing an audience of 200 women in pain and their allies.  At a conference she organized.  Major media covering the event.  Cynthia telling her story of survival and defiance.  Inspiring.

Enraging.

After over a decade of being bedridden, after nearly taking her life from the ensuing despair, a simple change in health care — emphasis on care — enabled Cynthia to get out of bed and onto her feet in three and a half weeks.

I am angry.

So many stories inside of me.  So many experiences of taking my healthcare into my hands, fighting for my survival and healing, being met with roadblocks, antagonism, refusal of tests and treatments. Being blamed for a profit-driven, sickness-oriented system above and beyond my control.

Cyhthia reawakens the activist beaten down inside me. This is not about me. This is political. Letting a 20-something, vibrantly healthy and alive young woman crumple and become a shadow of herself is a crime. A system that supports that crime is a violent state.

Energy rushing through in such overwhelming quantities that I have to leave.  My body is too small to contain the emotions.  When will I tell my story.  When will it not be so charged that I have to stop every time I start. Will I forget the details in the meantime.  The details are where the truth lies.  Will I effectively erase my own story with the passing of time. Will I render my own self invisible, so that I no longer can connect the dots, so that I no longer can trace the crumbs back home.

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We Can Do It: Riding through Depression

By: Loolwa Khazzoom, Founder, Dancing with Pain

September 17th, 2009 • 3 Comments

I was shit-faced today. Not in the had-too-many-drinks kind of way. Deeply depressed and anxious about a lot of big fat fucking deal things. So what did I do? I hauled my chronic-pain-assed body onto my bike and headed toward the beach.

I kept wanting to turn around. I didn’t. I biked down the slightly-terrifying, car-whizzing, freeway-entrance road to the beach path – feeling nervous, but doing it anyhow. Slowly. Carefully. Mindfully.

I biked on the beach. And while the sunshine didn’t quite penetrate the darkness in my soul today, it did prevent me from descending as deeply into the pit as I would have otherwise. What’s more, I got an awesome fucking workout. I biked 13 miles. I did it because I didn’t think I could.

And somewhere along the way, I think I even half-smiled at the turquoise-colored water.

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