Pain Specialist Encourages Patients to Keep on Keeping On

By: David Towns, pain specialist, The Pain Center of Arizona

June 27th, 2011 • 2 Comments

As an interventional pain specialist, I tell patients every day how crucial it is to keep a positive attitude, find things that bring joy, and maintain as healthy a lifestyle as possible. I know it’s difficult to find the inner strength to stay motivated and remain positive in the face of adversity, so I remind patients of the success stories of people who achieved their dreams despite chronic pain.

Take Emery Miller, who was born with a hole in his heart. He is just a young man but already has undergone five heart surgeries. Throughout his childhood, as well as during his recovery from surgery as a young adult, Emery endured overwhelming levels of pain. With pain management techniques and a positive attitude, however, Emery continues to do activities he loves. He is at the top of his game on the baseball field, for example — despite the fact that doctors said he never would be able to play.

It’s not only the pain medication and surgeries that typically bring down pain patients. It’s also the accompanying feelings of guilt, anxiety, and grief over having lost the life they once knew.

Doing things you love is a great way to keep your mind focused on the positive – in turn keeping you feeling motivated and strong. Spending time with loved ones, taking the dog for a walk on a beautiful day, playing catch with children, painting, and dancing are examples of activities that can reduce stress, increase serotonin, and literally decrease pain.

If pain makes it difficult for you to do activities that once brought you joy, look for alternatives. For example, if a Zumba class is too much for you, try water aerobics. If running is out of the question, try swimming. Even if the activities are lower impact, they still can help reduce your stress and lower your pain.

Every day we are inspired by the perseverance, strength, and incredible willpower of our patients at the Pain Center of Arizona. May you be similarly blessed to keep on keeping on – never letting pain stop you from living your best possible life.

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Beauty Formulas and Pain

By: Loolwa Khazzoom, Founder, Dancing with Pain

June 26th, 2011 • Leave a Comment

The summer I turned 19, I was hanging out on the balcony of the ground-floor family apartment in Israel, which overlooked a very busy street. Our apartment was right at the intersection, so cars often were stopped in front of our apartment, at a red light.

One afternoon, a carful of cute guys struck up a conversation with me while at the red light. This was back in the 1980s, when Israeli men were friendly and innocent, and it was safe to talk with strangers. Our conversation was light and fun, and as the boys drove off, I blew a playful “au revoir!” kiss. The guys loved that, and one of them blew a kiss back.

At the time, my hair was down; my contacts were in; and I was wearing a purple tank top, blue jeans, and purple belt.

That Saturday night, I was reading a book on the balcony. My hair was up; my glasses were on; and I was in sweats. Suddenly, a guy walked up to the balcony and said hello. I said hello back. He asked if I had a sister. I said yes. He asked if she had long hair. I said no. He continued asking questions about my sister, and I kept saying that was not my sister.

“Wait a minute,” the guy said, looking at me intently, an expression of amazement passing over his face. “Were you here the other day, when a carful of guys stopped at the red light and talked with you; and did you blow a kiss as we left?” “Yes,” I answered. “I’m the guy who blew a kiss back,” he said. I laughed.

Throughout my teens and 20s, I often experienced men having a completely different reaction to me, depending on how I was dressed. I came to understand that while beauty may be in the eye of the beholder, that eye is besieged with an onslaught of images of what is and is not attractive in a woman – to the extent that men are unable to recognize a beautiful woman unless and until she presents herself in a very specific way.

In college, I let my playful, creative spirit express itself through my dress. I had my punk rock look, my sexpot look, my athletic look, my urban look, and my totally unique look – an original boutique silk blouse on top, for example, black square dance skirt and black leggings on the bottom, and black lace-up boots on my feet. I seamlessly blended styles and textures, to fit whatever mood I was in at the time.

I loved wearing black turtlenecks with super short black skirts, fluorescent tights, and black pumps with three inch stiletto heels. It was bold and playful. And that’s exactly how I meant it – no less, no more. I was having fun. And I think that we need to be able to express ourselves in ways that are bold and playful without any assumptions being made about us or how we behave or how we want others behaving toward us. Case in point: I didn’t start dating until I was 18; I shared my first kiss at 19; and I didn’t have intercourse until well beyond my college years.

I couldn’t help but notice that when I dressed one way, men swarmed around me when I walked into a room; but when I dressed another way, I might as well have been invisible. Same woman, same body.

During my senior year in college, I like-liked a guy named Josh. I could tell he like-liked me too. I believe I told him that I liked him, which probably is what led to the part of the conversation I remember, where he indicated that, yes, we should date because we had this and that in common and because – get this — I was “a reasonably attractive woman.” I got my WTF face on and was like, “reasonably attractive”?! Then he kissed me. Then my bus arrived. I boarded it, weirded out.

Fast forward to an AIPAC conference a few weeks later. (I loved AIPAC conferences – tons of gorgeous Jewish college men! Oh yeah, and saving Israel, yada yada yada.) I was decked out in a totally original piece – tight black spaghetti-strap top and short black skirt, black pantyhose, black stiletto pumps, and a silver scarf thrown over the whole lot, down the frontside, belted at the waist. I remember being surrounded by 20 men as soon as I walked into a room. Josh was one of those men.

The next time we spoke, he called me a “drop-dead gorgeous” woman. Hm. What a difference an outfit makes. He also threw me on his bed the next time I visited his house, but I was no longer interested. If you can’t see me in sweats, you neither see me nor deserve me.

I’ve always been baffled by this assumption that if you are not dressed a certain way, it’s because you can’t dress that way, ie, you don’t have the goods to pull it off. I have come to realize that people see you exactly as they see you. Just as editors can’t see past the exact wording of the pitch you send; just as people assume that if you don’t have an MD or PhD or whatever other alphabet soup, it’s because you were too stupid or lazy to get it; just like anything else, most people see you exactly the way they see you in one snapshot moment, nothing more.

Which is why that whole “lady in red” song pisses me off. If you can’t see her beauty when she’s wearing polka dots, mister, leave her alone for someone more worthy to come along.

Anyhoo, in college, I was alternately anorexic, bulimic, and exercise bulemic. Then I had a few thoughts: Why do I only feel sexy when I dress a certain way, whereas men feel sexy even in sweats? And as a friend added many years later, “And why do we need to be sexy all the time?” I decided the system is fucked, the way women are viewed and responded to is fucked, and I was having none of it. I gained 30 pounds, began living in sweats, stopped shaving (again – I didn’t start until 18, and then it was pretty intermittent and with much internal conflict), and felt more beautiful than ever in my life.

During my 20s, I mostly stayed in sweats, by choice. But through a decade of chronic and debilitating pain from my late 20s and all of my 30s, I stayed in them by necessity. It’s not that I was rejecting wearing heels; it’s that I literally could not wear heels. Unless I put them on while sitting in a chair, and I did not get up from said chair until the heels were off. In fact, fuck heels. I couldn’t wear anything but well-cushioned running shoes, or I’d end up in awful pain and unable to walk.

Having a severely compromised life – on the beauty front as well as all other fronts – made me suddenly crave those little, stupid, formulaic indicators of beauty. I wanted to shave, to wear heels, to wear contacts. I felt so out of the world of romance and sexuality, that I suddenly didn’t have the energy to fight those stupid fembot things. I wanted the easy way in. Hair down, contacts on, armpits and legs shaved, heels on, even makeup on and eyebrows plucked. Check. Bring it on.

But this shit offends my sensibilities. And so beauty and self-image has been a see-saw throughout and since the years of chronic and debilitating pain. Here is what I have come to, or perhaps more accurately, come back around to:

Enough with these bullshit “Women Who Love Too Much” and “He’s Just Not that into You” books. Women need to stop catering ourselves around men’s needs, reading the latest issue of Cosmo to find out what men want. We need to start demanding what we want and backing it up with the fist if necessary.

I should be able to wear whatever the hell I want, where I want, when I want, without my safety or boundaries being compromised in the faintest shade. I wrote a book about this, Consequence: Beyond Resisting Rape, in 1996. Wearing teeny-tiny minis with turquoise tights and stiletto heels and whatever the hell else is fun and playful and should be treated as such, no more, no less.

During my book tour for Consequence, which I did in conjunction with spoken word artists, self defense organizations, a filmmaker, and improv jazz groups across the country, one of the spoken word artists wore a plunging neckline with a pushup bra. “I feel safe wearing this here,” she revealed. We should be able to feel safe wearing that attire anywhere at any time.

And that attire needs to be just one form of attire that we wear as an expression of our playful and pretty sides. And men need to wake the fuck up and recognize that. We are beautiful and sexy with armpit hair and unplucked eyebrows, free of makeup, perfume, and hair products, fat or thin, wearing what-the-hell-ever.

It feels bold, scary, and a whole lot less surefire to walk out in the world wearing a swimsuit with hairy legs. But it feels a whole lot more authentic. So damn it, get used to it and start to see it as beautiful.

I honestly don’t know what part of me is socialized and what is not. I do enjoy the whole femmy thing, but not when it’s a prerequisite for getting noticed. Then it’s just fascist and fucked. And I don’t like the way men look at me when I’m wearing anything that’s not up to my damn neck.

Anyhow, I’m still trying to figure out who I am right now when it comes to self-expression through clothing. I don’t want to have to fight all the time. In other words, I don’t want to have to call men on their shit whenever I wear a blouse with a v-neck (which I love). I feel exhausted by all this bullshit. Why do we live in such a misogynistic world? Why is it so damn difficult to figure out what’s mine and what is society’s? Why are people such robots who see what they are told to see, nothing more, nothing less, missing out on raw, authentic life?

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Help Kids Who Aren’t Getting the Love and Attention They Deserve

By: Loolwa Khazzoom, Founder, Dancing with Pain

June 25th, 2011 • Leave a Comment

Child abuse is rampant in this country and probably in other countries as well. We each have the power to intervene, in ways that are everyday but that I believe are huge for the kids. When you see a parent being mean or abusive to her/his child, say something.

The parent may (probably will) continue being the same to the child, but the child will have experienced a contradiction – a critical challenge to the behavior of the parent. You have no idea how transformational that little seed can be. A child can hang onto the experience for a lifetime.

I believe that health is not just a personal matter but also a societal matter. There is a kind of osmosis between the personal and the communal. So even from a health perspective, I think it’s critical to raise our voices and help move the world towards a more loving paradigm.

Tonight I was at Walgreen’s, picking up a Rx. I was in line behind a woman and her two kids, maybe four and seven years old. The woman’s energy was very harsh, and she kept telling her kids don’t do this, don’t do that, in a very unkind tone. She was super controlling, too – things that were totally harmless, like the kid asking a question or doing anything other than standing totally still and quiet like a statue got a reprimand.

The kids were clearly unhappy and bottled up – I mean, who wouldn’t be? I got the sense that they probably got whacked around at home. When the woman’s turn came up, and she was picking up her meds, she made her umpteenth scolding comment at her older son, apparently named Sergio. “Do you ever say anything nice to him?” I asked.

I don’t know if she didn’t hear me or if she ignored me, but that question got Sergio’s full attention. He kept looking at me after that, with a light that suddenly had come to life in his eyes. Plus the little son, sitting in the shopping cart with a dead expression on his face, suddenly had lighter energy and began to be responsive to my friendly interaction with him. The kids had been smelling some scratch-and-sniff coupons, so I made conversation with both of them (one-way verbally, but they were responsive in body language) about how much fun it is to have cool scented stuff.

Then, after another scold or two directed at the older son, the woman turned to walk away. “Please be kinder to your son,” I said gently. Again, I got Sergio’s full attention. The woman turned to look at me briefly then continued away, stammering something to the effect of, “Don’t you worry about how I treat my son…” I tuned her out after that. My intended audience, her son, had heard me loud and clear. He had an advocate.

When I finished with the Rx purchase, I turned to walk away. I heard the voices of the mom and her two sons (she was still busy scolding the older one), so as I walked away, I looked in their direction to send some love to the kids. Sergio was watching me. I smiled at him and waved, then left the store.

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Dear Doctor, Please Validate Me

By: Loolwa Khazzoom, Founder, Dancing with Pain

June 23rd, 2011 • 2 Comments

It’s common to hear people say that as distressing as it may be to get a diagnosis of illness, no matter how severe, it’s a relief when doctors find something. Because then the patient does not feel crazy.

I think there are larger questions here, which require us to examine the very nature of the medical system: Why do we turn to external measures to validate a very real experience in our bodies? Why might doctors assume that we are nuts if they cannot see what we experience?

And why is the mind-body connection in particular, and mental illness in general, effectively demeaned and dismissed, if in fact a patient might be a bit on the “nutty” side? Why are there shame and blame attached to psychological problems that require psychotherapy but not, say, vision problems that require glasses?

Like all good little American patients, once upon a time I used to look to external measures to tell me about my body. If I felt something off in my body, which I live in every single day, 24/7, thank you very much, I would go to the doctor. If the doctor didn’t find anything, I would assume everything was OK and blow off whatever was going on.

Here’s what’s really happening when I go to the doctor and I don’t find something: I’m getting feedback that our human-built machines do not have the sophistication or capacity to detect the particular imbalance I am experiencing. Period.

Which is why holistic medicine is far more useful in most situations: Rather than looking at the body part that feels off, it looks at the entire lifestyle and evaluates how to optimize the healing – through diet, relationship, sleep habits, exercise, meditation, and so on.

I also question why doctors assume that if they cannot find something, we must be having psychological problems, and why that assertion (or behavior embodying that assertion) comes with so much emotional charge – ie, that we are bad, evil, vile people for possibly having psychological issues.

What if someone does have psychological issues? The moral imperative is to approach that individual with love and get that person treatment, just as one would hopefully do if someone needed crutches or braces or glasses or prosthetics or whatever.

Here is how I think doctors need to operate:

  1. Listen with an open mind to our condition.
    Acknowledge there are as many different communication styles as there are people. Recognize that some people may be traumatized by previous doctor experiences and may therefore come off as being defensive, strange, or extremely anxious. Understand that one cannot possibly know the root of another person’s behavior, before it is revealed. Practice the spiritual discipline of compassion and humility – with the awareness that there is a marked power imbalance between a doctor and a patient.
  2. Reflect on and share information about the various possibilities
    There are many different possible causes for a whole host of symptoms. Inform us about these possible causes, and share an educated guess about which cause it is – also revealing why you make that guess. Encourage us to write down this information and keep it as a reference document, as you go down the path exploring causes and treatments.
  3. Inform us about and recommend treatment options
    There are numerous diagnostic tests available. Tell us which, if any, you recommend, and why. Be up front about all possible side effects of these tests.
  4. Inform us about other resources available.
    Make sure you have a network of conventional, complementary, and alternative health practitioners, as well as a resource list of where we can find out more information about our possible condition and treatment options.
  5. Let us make the decision about our bodies.
    If you are doing your job right, you are a teacher and consultant. You are not our boss, parent, Gd, or any other authority figure. Earn your respect instead of manipulating or coercing us into deference. Once you give us the information we need, let us make the decision of how to move forward; and be there to lovingly and intelligently support us on our path to wellness.

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Nodule Results and Rough Few Days

By: Loolwa Khazzoom, Founder, Dancing with Pain

June 23rd, 2011 • 3 Comments

I am feeling very sad. Seven months of hard core dietary changes, coupled with meditation, guided imagery, dancing, and singing did not succeed in shrinking the nodule. Today I was informed that it grew by 0.1 x 0.1 cm. It’s already hogging up ¾ of my thyroid gland.

Meanwhile I’ve been booted out of my apartment for three days, because the OCD maintenance crew in my apartment complex decided they had to replace all the doors, despite the fact that all the doors are working just fine. Is someone getting a kickback or what?

The new door they put in was too short, so there was a gap on the bottom. Enter Big Black Cockroach. Fortunately, I lived in Israel for years, so I adeptly chased the cockroach out the door, where it happily scurried away.

Meanwhile, the one broken item in my apartment has not been repaired, despite multiple requests. It’s been 100 fucking degrees, and my air conditioner does not work. Maintenance keeps claiming that it’s totally normal for AC to only bring the temperature down to 85 degrees, when you have the damn thermostat on 78 for twelve hours straight. I am not exaggerating by one minute here.

So I’m expected to pay over $1300/month for rent, plus about $500/month in utility bills for an AC that runs constantly but doesn’t do much. On the first day, when I informed the maintenance supervisor that my AC was on for an hour but the temperature only went from 87 to 85, he said, “Well, you were gone all day. Your apartment was hot. It takes time.”

It’s too noisy to be home during the day and too hot to be home at night. I have been staying at my mom’s, but as she often does when I’m vulnerable and in her space, she got all crazy on me, going for the jugular on some deep wounds, then leaving me a million messages back to back, saying lord knows what – I deleted them without listening.

Why is my family so fucking crazy? Can’t everyone just chill the fuck out and be normal and caring and supportive? Even relating to the loving parts of my clan is like playing a game of Russian Roulette. Then there’s my dad, who is just all about manipulation and control and possession, playing fucked up power games when I’m at my weakest and most vulnerable. Of course, he cries victim when I boot him out of my life again.

I end up feeling guilty all the time, on top of feeling traumatized, on top of dealing with whatever other crap I’m dealing with – like financially scrambling and fighting cancer and managing pain and shit.

I am feeling a lot better than earlier, though. I have spoken with some friends and reached out to some colleagues who can help me deal with the nodule on the energetic and mind/body levels. I am very proud of myself that I take excellent care of myself. I may have no control over certain circumstances of my life, but I refuse to be controlled by them.

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