Help! I need someone to organize all this awesome cancer info

By: Loolwa Khazzoom, Founder, Dancing with Pain

July 21st, 2011 • Patient AdvocacyPrint Print

The cool thing about being in my line of work is that I know a whole bunch of awesome people in the field of conventional, complementary, and alternative health care. And so I have gotten quite a bit of information and resources over the past 24 hours, about options for treating my thyroid cancerish. Calling it cancerish, of course, because the only way to tell definitively if the “suspicious” cells are cancerous is to take out the entire thyroid lobe.

I am feeling overwhelmed, especially because I need to dedicate my time right now to making money — to tie me over during the weeks I’m recuperating, assuming I get surgery. So I’m officially asking for help: I am looking for someone who can organize all the information for me, in the following manner:

  • Practitioner or method
  • Website
  • Contact info, if available
  • Type of cancer treated
  • Summary of approach to cancer treatment

That will help me narrow down what interests me and what doesn’t, which in turn will save me a whole lot of time and energy. In appreciation of your time and care, I will happily offer some freebie Dancing with Pain products – downloadable audio class and e-book.

Takers?



Comments

Doctor j July 21st, 2011

I would recommend doing the following:
1) Obtain the copy of your biopsy report
2) Look for the comments regarding the “arrangement” of Hurtle cells
If they are located in the clusters or sheets and the nodule has no colloid, we are looking at the neoplasm which has 25 % of being cancerous; “few occasional Hurtle cells” in the sample may be present due to the different condition.
The diagnosis of the Hurtle cell cancer can be made after nodule removal; not sure if molecular testing for cancer can help here

Doctor j July 21st, 2011

I would like to add:
you may want to talk to Dr Kerner  from Nortige Hostpital ; this Hurtle cell cancer patient’s blog may be informative :
http://kpatricia19-inhale-exhale.blogspot.com/2010/11/surgery-story.html
 

 

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