My Chronic Pain Friend’s Vigilant Fight for Her Life

By: Loolwa Khazzoom, Founder, Dancing with Pain

July 17th, 2009 • Living with Chronic PainPrint Print

I’m really upset about what a dear friend of mine is going through. She’s a brilliant, profound, loving, gentle, loyal woman who has been such a blessing in this world. And she is fighting for her life. Her autoimmune system completely shut down, and without going into details, suffice it to say that she is in chronic pain hell. Oh yeah, and her doctor is not calling her back.

The other day, she said something that really struck me: “How many more of us need to suffer, how many more people need to become paralyzed or dead before people wake up and the system changes?”

I feel that the chronic pain movement today is where the feminist movement was before the revolution of the 1960s: Women who protested the sick core of our patriarchial codes were pathologized, demonized, and made to feel like rotten and weak individuals. Similarly, those of us who have been victimized by the health care system and who are willing to speak up about it are then attacked and accused of having a bad attitude, bringing it all on ourselves, walking through the world like victims, and so on.

It is sick and cruel. As I have mentioned before, it simply adds another layer of suffering to the trauma we endure.

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