Comments on: Women in Pain Conference

By: Tina Sinclair

Tina Sinclair — Mon, 07 Jul 2008 22:01:14 +0000

just a quick note to let others know that the box of china or the things that you cannot pick up or move with ease doesn’t mean we are no longer strong women.

By: sharon shani

sharon shani — Sat, 05 Jul 2008 12:41:10 +0000

dear Loolwa’
when I saw your name Loolwa so its just got to be you. there’s only one Loolwa!
some years ago you came to my clinic at country dekel and you received a massage from me. I remember you being very special but since it was so long ago, cannot quite remember what took place, but know it was special?!
so today of all days I am in agony with back ache and totally out of action, so having to slow down and rethink….
so hoping your pain subsides, as now I know it, its extemely hard to function.
take good care and lots of love (if you remember me?) Sharon

By: Shelia

Shelia — Tue, 01 Jul 2008 21:24:20 +0000

I wish i could have went to the conference, but live so far away!! Thanks for the posting, it always makes me feel part of a great group of women to read the blogs and explore the For Grace website. I need to find a local support group but i am hesitant to go in case i actually know someone. I am still very fortunate that i have a good job and can still pull that off and raise 2 kids, with the help of a wonderful husband, but sometimes i need some mental support from someone who understands pain. Like everyone else on here knows, since i dont look like anything is wrong with me, people seems to forget that i cant do everything they ask!! Keep up the good blogs!! And God Bless all the women in pain around the world. Through him we will win this battle!!

By: Marsha

Marsha — Mon, 30 Jun 2008 16:12:12 +0000

Thanks so much for this blog!!! This sums up my experience so well!

I really appreciate your writing about this.

And thanks for the links!!!!

YOU rock!

By: Greg

Greg — Mon, 30 Jun 2008 01:35:33 +0000

I was just reading the book “The Lonely Patient” by Michael Stein. In the book he says that one of the problems with disease vs. pain is that disease can be seen and pain has to be believed. It’s amazing in this day and age that the medical community’s first thought is that people are drug seeking.

Pain is so misunderstood and to the medical community and researchers one of life’s great mysteries. It’s crucial that those facing chronic pain, especially women stand firm on their demands for relief strategies and new treatments. I make the gender difference because many medical professionals I speak with refer to men’s stoic nature and therefore when they present with pain they are more readily “believed”. I’m not saying it’s fair, I’m saying it’s the way it is.

We have to co-create new relationships and understandings with our medical teams. Longer appointments so that the doctors could get to know us would be a start. Having a relationship with the medical provider helps us be believed.

Thanks for sharing your experience and kudos to the organizers of the Women in Pain conference.

By: Jennifer Hughes

Jennifer Hughes — Sat, 28 Jun 2008 00:31:14 +0000

Loolwa you are so wonderfully amazing and so right-on! with this fabulous insight and reflection not only in regards to the conference but how all of our lives effected in so many different ways. I am soooo fortunate to have met you that day too and start a new friendship. Take care and all my love to you and all of us Fabulous Women In Pain all over the world – You are always in my thoughts and prayers.

By: Paula Kamen

Paula Kamen — Fri, 27 Jun 2008 16:38:57 +0000

Thanks for the posting! I was sorry to miss the conference but now feel like I was there, thanks to the vivid and personal description. Especially intriguing was the doctor/patient scenario acted out, which I hope goes on the road for more performances to healthcare givers.